Support for people with brain injury

By Todd Cohen

RALEIGH, N.C. — An estimated 200,000 people in North Carolina, or about two percent of the population, are living with the long-term effects of brain injury, with an average lifetime cost of care for a moderately injured young person with brain injury totaling over $4 million.

Yet state lawmakers allocate only $2 million a year specifically for services for traumatic brain injury, or about $10 per person with a disability related to brain injury.

Working to provide support for people affected by brain injury, and to raise awareness about its impact, the need for more funding, and ways to help prevent it is the Brain Injury Association of North Carolina.

“It’s life-changing for the person, and for the family many times,” says Ken Jones, executive director of the Raleigh-based Association. “The life that they knew prior to the  brain injury is different than life after the injury.”

Individuals ages 15 to 24 suffer the highest numbers of severe traumatic brain injuries, which are the leading cause of death and disability among young people in the state, the Association says.

Males are 1.5 times more likely to sustain a brain injury than are females, and falls and motor-vehicle accidents are the top two causes of brain injuries.

Brain injuries can affect an individual’s emotions, cognitive or physical abilities, or decision-making skills. Many individuals affected by brain injury experience short-term memory loss.

Founded in 1984 and operating with an annual budget of $675,000 and a staff of 10 people, the Brain Injury Association receives about half its funding from the state, 40 percent from the federal government, and about 10 percent through private fundraising.

Its main fundraising activity has been a walk-and-wheelchair event targeted to families affected by brain injury, but a subcommittee of its board is developing a new fundraising strategy aimed at the general population.

The Association provides 160 training sessions a year serving a total of 6,000 brain-injury survivors, professionals and families, and also provides an annual conference for each of those groups. And it provides education sessions on concussions at 10 schools.

The Association also hosts a resource-and-referral hotline and website that field a total of 6,000 phone calls and email messages a year.

To raise awareness, it hosts events, such as Strike Out Concussion days last year at Carolina Mudcats and Asheville Tourists baseball games. And it distributes a weekly e-blast and quarterly newsletter to about 2,000 subscribers.

Jones, former CEO for Eastpointe Human Services, a managed-care organization that serves 12 counties in Eastern North Carolina, is not a registered lobbyist but spends a lot of time in the Legislative Building in Raleigh.

Last year, he talked to state lawmakers about the impact of a proposed bill that would have eliminated the requirement that adults riding motorcycles wear helmets. The bill did not pass.

North Carolina is the leading state in the U.S. for lives and money saved as a result of its universal, mandatory helmet law, Jones says. In 2010, helmet use in the state saved $163 million for every 100,000 registered motorcycles.

In the short legislative session that begins in April, Jones will be talking to lawmakers about the need to increase funding for individuals with brain injuries to support not only medical treatment, but also residential care and integrating survivors back into the community.

The Association also supported a change in Medicaid funding that will affect 107 individuals in the state on a pilot basis over three years starting this year, providing reimbursement for care that can be delivered at home or in an outpatient clinic rather than a hospital or nursing home.

“This could happen to any individual and any family,” Jones says. “There is very little support. A family ends up caring for the individual, in severe cases 24/7, or the individual becomes part of the public system in an institution.”

Advertisements

Meals on Wheels delivers ‘more than a meal’

By Todd Cohen

DURHAM, N.C. — Every weekday at 8:30 a.m., a dozen volunteers gather around tables in the offices of  Meals on Wheels of Durham to assemble meals that another 30 volunteers will deliver the same morning to about 400 seniors and individuals with disabilities.

The volunteer drivers also spend a few minutes speaking with their clients, and making a quick visual assessment of the meal recipients’ mental and physical well-being. The volunteer drivers also deliver pet food for meal recipients who have pets and, on Fridays, deliver two bag lunches for the weekend for clients who request them.

Meals on Wheels is “more than a meal,” says Gale Singer Adland, who joined the nonprofit as executive director in 2009 after working for more than 30 years as a software programmer. “It’s a lot more than just bringing food to somebody.”

The group is one of nearly 5,000 community-based programs in the U.S. dedicated to feeding seniors, including programs serving nearly every one of North Carolina’s 100 counties, Adland says.

And as a member of Meals on Wheels America, she says, the free-standing Durham nonprofit benefits from research, education, advocacy and a national conferences, as well as group-buying discounts it otherwise might not have access to or be able to afford.

Founded in 1975 , Meals on Wheels of Durham operates with an annual budget of $900,000, three full-time and two part-time staff, a part-time bookkeeper, and nearly 200 volunteers.

Meals on Wheels, which does not have its own kitchen, pays less than $4 a meal to Spicy Green Gourmet, which cooks the meals and delivers them to the nonprofit each weekday morning for assembly and delivery by its volunteers.

Meals on Wheels also buys most of the ingredients for the weekend bag lunches that are delivered along with meals each Friday — although bread is free — from the Food Bank of Eastern and Central North Carolina, paying 18 cents a pound for nearly everything.

The nonprofit also gets donations of pet food for meal recipients’ pets from Paws on Durham, and from Walmart.

And with a $5,000 gift from Westminster Presbyterian Church, Meals on Wheels is partnering with Habitat for Humanity of Durham to install doorbells, door handles and ramps for meal recipients who need them.

Last year, in its annual survey of meal recipients, Meals on Wheels found that well over half of them did not have a working doorbell.

The nonprofit also partners with other organizations that provide volunteers, including the schools of public policy, law and nursing at Duke, and the Department of Nursing at North Carolina Central University.

Meals on Wheels has two contracts with Durham County that account for about half its annual revenue, and generates another 10 percent of its funds through contributions from about 15 percent of its clients.

And to address other needs they may have, it refers its clients to other nonprofits, including A Helping Hand, which assists with shopping, companionship and minor house upkeep.

Meals on Wheels generates its remaining funds from foundations, corporations, churches and individuals. In addition to fundraising appeals it mails each fall and spring, it will host its inaugural gala, presented by Ellis Family Law, on February 24 at 21C Museum Hotel.

According to research by Meals on Wheels America, Adland says, seniors who receive home-delivered meals, compared to seniors in similar circumstances who don’t receive meals, feel safer in their homes; said they were less depressed and more physically active; visited a doctor, urgent-care facility or emergency room less often; and had fewer hospital stays.

Yet with its annual client base growing by over two-third to 530 individuals in just two years, and the number of seniors in Durham County projected over the next 10 to 15 years to grow more than 60 percent, Meals on Wheels is looking for ways to meet growing demand for home-delivered meals.

“We have lots of people who want food,” Adland says. “The only thing preventing us from feeding them is more funding and more volunteers.”

Carrboro nonprofit uses art for healing

By Todd Cohen

CARRBORO, N.C. — In the Chapel Hill-Carrboro and Durham public schools, students who are refugees or immigrants, typically do not speak English, and generally have lived in the community for less than a year, draw pictures and use other forms of art to express their feelings and talk about themselves and where they grew up.

At Durham nonprofit Families Moving Forward, a group of single parents who are homeless and living in transitional housing meet once a week in a group and use music or other art activities to help work through challenges they face.

And at Galloway Ridge, a retirement community in Chatham County, residents with Alzheimer’s disease or dementia spend time every other week occupying themselves with painting and other arts activities.

Providing all those programs is the Art Therapy Institute, a Carrboro nonprofit that provides therapeutic art-making opportunities for people who experience illness, trauma or other challenges in living.

“Art transcends language barriers,” says Hillary Rubesin, interim executive director at the Institute. “A lot of the population we work with are considered marginalized groups. Providing them with the tools and the means to share their own voices — that’s the power of the arts.”

Feeling disconnected can make life difficult for children and adults alike, whether they are new to the region, don’t speak English, are homeless, or live with a physical disability, mental illness, cancer or dementia, says Rubesin, an expressive therapist who uses the arts — such as painting, music, dance and drama — for healing.

Formed in 2006 as a program of The Exchange Family Center in Durham, the Institute became a nonprofit in 2009.

It operates with an annual budget of $200,000, a staff of six full-time clinicians, and clinical interns from local and national colleges and universities, plus about 80 volunteers, and serves about 500 people a year, including about 400 children.

It offers six clinical programs, most of them through partnerships with public schools and nonprofits.

Its exceptional children’s program, for example, serves about 150 students with physical or “processing” disabilities once a week for 30 minutes to an hour in their self-contained classrooms in 20 schools in the Chapel Hill-Carrboro public school system.

To help build their social skills, reduce their anxiety and increase their self-esteem, children with physical disabilities, such as blindness, can squeeze nontoxic, scented food coloring into sand, for example, and then make pictures in the sand to express themselves.

In self-contained classrooms in 20 Chapel Hill-Carrboro and Durham public schools, therapists from the Institute meet once a week with a total of about 150 students who are newly-arrived refugees and immigrants, many of them dealing with past trauma and many of them who cannot speak English, using art to “share parts of themselves and their stories,” Rubesin says.

The same “Newcomer” program, in partnership with resettlement agency Church World Service in Durham and at its own office in Carrboro, also meets every other week with a total of about 40 adults who use art to express themselves and connect with one another.

The Institute also hosts a free weekly community arts group at its office for any adult in the community who identifies as living with mental illness, and provides arts therapy groups at Duke Hospital and UNC Hospitals for children with cancer, as well as monthly arts shows and monthly art-therapy workshops.

Now, the Institute aims to raise more money through grants and from individuals to grow through even more partnerships, including introducing its program for refugee and immigrant adults and children in Wake, Guilford and New Hanover counties.

“For newcomers coming to this country who often cannot speak English or have such intense trauma backgrounds, they’re sometimes not even comfortable talking about it in their own language,” Rubesin says.

“The arts are an equalizing tool for people who might not feel confident in other aspects of their lives, or who might be suffering from mental illness,” she says. “It’s about  being able to express themselves through art. It allows you to tell your story in a way that you want it to be told.”

Triangle families host low-income New York City kids

By Todd Cohen

RALEIGH, N.C. — On July 12,  a handful of low-income children ages seven to 16 from New York City are scheduled to arrive by bus at the Hilton in Durham.

Greeting the children will be a local volunteer for the New York City-based Fresh Air Fund, and families from Raleigh that each will host one of the children for a week.

Two weeks later, a second handful of New York City children will arrive at the Hilton on a bus for a one-week stay with a second group of local families.

“Families will learn things about themselves and about someone who comes from such a different environment, and they will also see how many similarities they have,” says Brandy Shaw, a commercial real estate paralegal for Moore & Alphin in Raleigh who serves as volunteer chair for the Fresh Air Fund in the Triangle.

Formed in 1877 to provide free summer experiences for children living in low-income communities in New York City, the Fresh Air Fund has served over 1.8 million children in need.

In 2016, nearly 7,000 children visited the homes of volunteer host families on the East Coast of the U.S. and in Southern Canada, or visited one of the Fund’s five camps in upstate New York.

As part of a larger effort to connect New York City kids with host families in more parts of the U.S., the Fund expanded to North Carolina in 2013, initially in the Triad, and then to the Triangle in 2014.

Thirty-six have visited the state since 2013, and another 20 are expected to visit this summer, some in the Triangle and some in the Triad.

Local families that apply to the Fresh Air Fund to host a child for a week typically find out about the organization online or by word-of-mouth, says Shaw.

And based on the relationships that develop, some children may stay with a family for longer than two weeks or continue to return over many summers or other parts of the year.

Before moving to North Carolina in 2007, Shaw served as a volunteer escort for the Fresh Air Fund in upstate New York, where her mother, her mother’s mother, and her mother’s mother’s mother all had volunteered for the organization.

Her role is to visit applicant families, which must fill out a form designed to help the Fresh Air Fund determine whether they will provide a safe environment and engage the children they are hosting in activities such as boating, bicycling, camping, visiting parks and going bowling or to movies.

Based on the forms, the Fresh Air Fund selects host families and matches children with them.

Shaw greets the children when they arrive by bus, plans a picnic or other activity for all the families, and is on hand when the families drop off the children for the bus ride back to New York City.

The Fresh Air Fund, Shaw says, “would like to see more kids coming to North Carolina and other areas and see a different place than they otherwise would not have experienced.”

Group works to fill gaps for people in need

By Todd Cohen

CARRBORO, N.C. — Roughly one in five people who live in Orange County are poor, and many people who work at service jobs in the county cannot afford to live there.

“There’s a huge disparity between haves and have-nots in Orange County, one of the most  affluent counties in the state,” says John Dorward, who just stepped down as co-director of the Inter-Faith Council for Social Service in Carrboro.

And with state and federal government cuts looming in spending to address basic human needs, he says, demand for those services will only increase.

Founded in 1963 by seven women from different churches who wanted to help close a gap they saw in services for people in need, the nonprofit today provides basic services for people living and working in Carrboro and Chapel Hill.

Those services range from emergency financial support and crisis intervention to homeless shelters and a community kitchen, food pantry, and medical and dental clinic.

The Inter-Faith Council operates with support from 50 to 60 churches, a staff of 19 full-time employees and eight working part-time, 750 volunteers, and an annual budget of $1.9 million, plus in-kind gifts worth another $2.2 million to $2.4 million.

In September 2015, after raising $5.9 million in a capital campaign, the Inter-Faith Council opened a 52-bed men’s shelter at 1315 Martin Luther King Jr. Blvd. in Chapel Hill, replacing a smaller shelter in the former municipal building on West Rosemary Street.

And now it is preparing for a campaign to raise $5.2 million to raze a building it owns at 110 West Main St. in Carrboro that houses its food pantry, crisis-intervention services and administrative offices, and build a new facility that will house those programs as well as its community kitchen now located in the Rosemary Street building.

The new facility, which would open near the end of 2020 and still needs approval from the town of Carrboro, would  include a larger kitchen that would allow the Inter-Faith Council to offer classes in food, nutrition and cooking, and to better recycle food in the community, says Dorward, who retired in 2015 as director after 13 years with the organization and returned as co-director last August.

Succeeding him on April 10 was Jackie Jenks, former executive director at Hospitality House in San Francisco, although he will continue to work as a volunteer on the capital campaign and development of the new facility.

Each year, the community kitchen at the Inter-Faith Council serves about 60,000 meals to people in need, while its food pantry provides about 13,000 to 14,000 bags of groceries.

Its 50-bed facility for women and children, and its facility for men, are the county’s only homeless shelters. People staying in the shelters also can get medical and dental services from the Inter-Faith Council’s clinic, which is operated by Piedmont Health Services.

The Inter-Faith Council also provides support teams of eight to 10 volunteers each that are paired with individuals — many of them preparing to leave its homeless shelters for permanent housing. The teams help them as they move to independent living.

The organization counts on contributions from individuals, congregations, foundations, businesses, government and United Way, and through special events, including RSVVP, an event each November in which 100 local restaurants contribute 10 percent of their receipts for a single day, and the Crop Hunger Walk, which was held April 23, in partnership with Church World Service.

“The safety net has got lots of holes, and we are the bottom of the safety net, and we have to turn people away,” says Dorward. “With continued support from the community, we will look to strengthen the safety net wherever possible.”

Salvation Army works to fill gaps for homeless kids

By Todd Cohen

RALEIGH, N.C. — Twenty-nine homeless children in Wake County who otherwise might not get critical health and social services they need will now be connected to them, thanks to $2,900 raised by a fourth-grade class at Grace Christian School in Raleigh.

The students raised the money as a class project after hearing a presentation from Project CATCH, a program of the Salvation Army of Wake County that coordinates collaborative services and serves as an advocate for homeless children.

The presentation was part of a new effort by Project CATCH to raise awareness about Wake County’s 5,000 homeless children, including 2,900 who are school-age and over 1,250 who need mental-health care.

Every night, nearly 300 children in Wake sleep in shelters. Thousands more are forced to double up in the homes of family or friends, or live in cars or hotels, or sleep on the streets.

Children who are homeless typically have experienced or been exposed to violence in their neighborhood or family, says Jennifer Tisdale, coordinator of Project CATCH.

Yet those children often can seem invisible, with their needs not understood or addressed, she says.

Homeless children face health problems and lack access to health care, she says. They experience high rates of problems with mental health, learning, cognition, language development, and academic achievement.

Yet shelters typically focus mainly on addressing the immediate needs of homeless children and families for jobs and housing because those needs are critical and the shelters’ resources and staff are limited, Tisdale says.

And most shelters have limited protocols for screening and assessing children, as well as procedures for referring children with needs to appropriate mental-health providers, she says.

Shelters also typically lack sufficient resources to keep track of children over time to ensure they get effective services, she says.

Project CATCH — Community Action Targeting Children who are Homeless — works to fill those gaps.

Formed in 2011 in collaboration with the Young Child Mental Health Collaborative and initially funded by Wake County SmartStart and John Rex Endowment, the program partners with 11 shelter programs, including the one at the Salvation Army, and with 18 community programs, to offer physical, emotional and education services.

Operating with an annual budget of $141,000, two full-time staff members and four interns from N.C. State University and the University of North Carolina at Chapel Hill, it receives child referrals from the shelters and the Wake County Public School System and has served 1,500 children.

It also provides a child-abuse-prevention program in three shelters for parents experiencing stress from homelessness. And it serves as lead agency in a collaborative effort to address the needs of families living in hotels.

“We are aligning and providing children with services they otherwise would not have,” Tisdale says.

Project CATCH refers every child it serves to five or six agencies, on average. It provides food and clothing for 80 percent of the children it serves. In partnership with The Diaper Train, it provides diapers to homeless families.

It also provides families with food through the Salvation Army or gives them food vouchers from Catholic Charities or Wake Relief.  And it connects homeless children with after-school camps and extracurricular activities.

Child and Family Well-Being and Homelessness, a new book, includes a chapter on Project CATCH by Mary Haskett, a psychology professor at N.C. State, and co-authored by Tisdale and Amy Leonard Clay, a doctoral candidate at N.C. State.

Haskett suggests in the chapter that Project CATCH could serve as a national model to increase access to mental health services for homeless children.

First, however, the program aims to raise awareness and funding to sustain itself and add at least one more case manager, Tisdale says.

Project CATCH is partnering, for example, with the Contemporary Art Museum, which has visited the Salvation Army shelter to work on art projects with homeless children and is considering a display and exhibit of their work.

Project CATCH also is developing plans with the North Carolina Museum of Art for an art show featuring work by local artists the program has worked with to raise awareness about homeless children.

“When nobody know about you, it’s really hard to raise funds, and if we don’t, our doors will close by the end of the year,” Tisdale says. “Our goal is to create more awareness about the problem and issue so more people will become engaged.”

Center works to boost volunteer caregiving

By Todd Cohen

CARY, N.C. – Every week, volunteers for the Center for Volunteer Caregiving in Cary drive seniors and adults with disabilities in Wake County to doctors, grocery stores and pharmacies, and to government agencies to enroll in programs like Social Security.

Volunteers, who use their own vehicles and are selected by the Center to participate after it screens and assesses them, can use an online calendar to choose assignments that fit their schedules.

The Center spent the last year developing the calendar using Volunteers for Salesforce, a software system for customer-relationship-management, or CRM, that it purchased with $30,000 from a grant it received from GlaxoSmithKline in 2013.

The online calendar is part of a larger effort by the Center to build long-term relationships with volunteers, companies and funders to serve seniors in Wake County, which is home to an estimated 70,000 individuals age 65 and older. By 2030, that population is expected to grow to over 200,000.

The Center was launched in 1992 by 12 churches in Cary and Raleigh with $25,000 from the Robert Wood Johnson Foundation in New Jersey as part of its national effort to help faith congregations create formal volunteer programs to serve seniors and adults with disabilities. Previously, congregations had provided those programs on an informal basis.

A key goal was for the new programs to use formal screening, background checks and training for volunteers.

Operating with an annual budget of $425,000, the Center employs six people full-time and one-part-time, counts on 350 active volunteers, and serves nearly 800 individuals a year.

In addition to transportation, the Center provides volunteer relief and seminars for caregivers, as well as information and referrals, mainly to home health agencies that can assign substitutes for caregivers who need time off.

And in October, with a $25,000 grant from a family fund at Triangle Community Foundation, the Center launched a pilot program that provides relief once a month for up to 12 caregivers who support individuals with dementia.

Those individuals spend three-and-a-half hours at Genesis United Methodist Church in Cary. Then, through a collaboration between the Center and the five Rotary clubs in Cary, the individuals spend another two hours for dinner and entertainment at the “Memory Cafe,” a program at the town’s Senior Center.

With rising demand for its services, the Center for Volunteer Caregiving is working to increase the number of its active volunteers to 500 from 350.

To help do that, it has posted on its website a four-minute video produced by Blueforest Studios in Raleigh in its second annual pro-bono effort.

Lynn Templeton, executive director at the Center, says effective support for caregivers depends on cultivating long-term relationships.

This year, for example, the Center is getting $15,000 from Raleigh insurer Genworth, which for the past 15 years has provided it with annual grants ranging from $5,000 to $25,000.

George Reichert, chief information officer at Genworth and a member of the Center’s board of directors, led the effort to develop the online volunteer calendar.

The Center’s 14-member board also includes executives from Eisai, Quintiles, John Deere and WakeMed, as well as local attorneys.

“When we get to know companies,” Templeton says, “I try to start by involving them as volunteers, then try to get invited to apply through their grant process, then try to leverage excellent board members.”

Long-term relationships also are critical for effective volunteering, she says.

“We need volunteers who can invest in a relationship that is going to help alleviate loneliness and depression” on the part of seniors and adults with disabilities, she says. “There’s something to be gained on both sides.”